Last year when I was first diagnosed with Usher Syndrome II, I was googling blogs, websites, links to anything or anyone that I could connect with. I only found a few (which I have links to already on here) but no active blogs. I just really wanted to meet someone who could relate to exactly what I was going through. Now I know why they have support groups for things like this! It just helps knowing you aren’t struggling alone.
Yesterday I thought I would try searching Pinterest again for anything related to Usher Syndrome and to my surprise a blog showed up! I went on it and found out it was active and also that it was apart of a website called “The Megan Foundation” I was even more excited to find out that the gal is in her late 20’s AND has Usher Syndrome II just like me. I read every single blog post that was on there and laughed and shed some tears as I could relate to everything she was saying. It felt good…though I actually got a major headache afterwards! It think I was starting at the screen for way too long. My son had been napping for 4 hours (he never does that!) so I had a lot of time on my hands/eyes.
Megan – If you are reading this. I hope we can become friends. Feel free to share any and all struggles that you go through…I’ll understand! ha. 🙂
For anyone who wants to help donate and raise awareness for Usher Syndrome, please visit the website below!
This site gives me hope that there will be a cure in my lifetime.
Maybe through THIS God will heal me?